Text 32783, 113 rader
Skriven 2009-12-28 11:03:17 av Sean Dennis (1:18/200)
  Kommentar till text 32773 av MICHAEL LOO (1:123/140)
Ärende: Mutations 587
=====================
Hello, MICHAEL.

Monday December 28 2009 at 02:41, you wrote to me:

 ML> Hard to say who's the mutation and who's the unmutated.

I was told it's mostly Asian countries that have the "regular" gene and mainly
Americans and certain Europeans that have the "mutated" gene.  This was
something that was told to me and I honestly have no idea one way or the other.

 ML> Being okay with lactose but not with whey seems to indicate that
 ML> you do badly with milk protein? That's equally troublesome as my
 ML> problem but harder to work around. For a while I had a tough time
 ML> with large amounts of milk protein as well, but that seems to
 ML> have resolved itself.

It seems that way.  As I told Dirty Dave, I have a couple of weird, but
livable, side effects depending on the amount.  A glass of milk is okay, but
ice cream causes me to be partially deaf for a few hours. :P  But after
learning how much sugar is in milk and dealing with my "diabeetuhs", I don't
drink too much milk.  My main enemies now are salt and sugar, which I try hard
to control.  I've lost a lot of weight and I'd like to lose a lot more, so I'm
being more careful on the eating part, including dairy.

Here's something that might make you go "hmm" - I'm allergic to the mold that
is naturally in wheat even after it's been processed.  I'm deathly allergic to
mold (we're talking anaphylactic shock here) so I am careful.  However, my mold
allergies seem to have lessened, at least where wheat is concerned, over the
years.  But when it rains, I feel terrible, like I have the flu, until it all
dries up.

With concerns to dairy products now, it's more of the sugar and fat content
than anything else.

 ML> The enzyme pills don't always work. Sometimes it's the pH of the
 ML> food (there has to be an acid but not too acid environment),
 ML> sometimes it's an issue of the enzyme actually getting into
 ML> enough contact with the lactose. I tend to crunch my pills just
 ML> a little, which makes a sort of sandy eating experience but
 ML> seems to help.

Maura (after reading the above paragraph) said that she hasn't had too many
problems with most things except for ice cream which sends her system into
overdrive.  She says that she's been taking more fiber and while she's not sure
if there's a direct correlation, it seems to help with the lactose intolerance
side effects (she laughed and says, "I'll be polite!").

In any case, I still feel for anyone who's lactose intolerant and enjoys dairy
products.  At least with my allergies, the side effects are tolerable and don't
bother me too much-more like an annoyance.  My wife can be disabled for hours
if she's not careful.  She seems to tolerate lactose-free milk and certain
cheeses in careful moderation.  She particularly likes goat cheese as it gives
her no real problems.

 ML> I'm still figuring out the water and the lung fluid thing. The
 ML> docs seem uninterested - it's hey, you can fix it with pills,
 ML> so why not do so - and the literature (internet captured) is as
 ML> usual wildly contradictory.

I thought fluid in the lungs could be caused by salt intake?  I remember
something about this in my pharmacy tech classes, but my memory is too hazy
otherwise.

<tangent>
Doctors love to toss pills at every problem to treat the symptoms but not treat
the underlying problem(s).  As for being uninterested, I know what you mean.
From what I understand, my nurse practitioner (I don't rate a real doc at the
VA :) sees around 900 patients in her "portfolio".  She has a tendency to say
"have some pills, see you next year", but she's learned to listen to me for two
reasons: 1) I try to do a little research on the medications I'm prescribed and
with my CPhT training, she listens to me and 2) I'm not afraid to see the
patient advocate.

When I first moved here, I was due to get a CPAP machine.  I'd moved a few
weeks before my appointment in Atlanta.  It was on my records and I knew it,
but when I brought it up to her, she seemed like she didn't care and told me "I
couldn't find it in your records."  I called my former provider in Atlanta who
told me my current primary care provider was lazy and could look for it in my
computerized records if need be.

Mind you, I was tired of being tired and wanted this done.  So I went into the
patient advocate's office, calmly and politely explained my situation and was
amazed: the advocate looked in my records and within about five minutes, saw
that I was due to be seen for one.  He immediately walked me down to Pulmonary
and got me an appointment.  Within two weeks, I was in Pulmonary.  The training
doc came in (ETSU's School of Medicine works closely with the VA here), took a
look at my throat and hmm'd.  Talking to the doc-in-charge, they said just by
looking at my throat and not looking at my sleep study, I had sleep
apnea....and the rest is history.

FWIW, everyone else I've dealt with at this VA has been really nice.  It's just
the one person I'm supposed to trust the most I can't stand.

After this, my nurse practioner took me more seriously.  She's rather cool
towards me now and what's odd is that I haven't seen her, but other doctors,
since around May of last year.  I'm due for another appointment soon-my
prescription for my syringes has expired and the VA here says you have to have
a face-to-face to get new prescriptions.
</tangent>

 ML> Mango Ice Cream

Hmm, Maura would love that.  I have found condensed goat's milk at Earthfare (a
regional natural health foods chain), so that might be a possibility!

Later,
Sean

//sean@nsbbs.info | http://nsbbs.info | ICQ: 19965647

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