Text 10739, 197 rader
Skriven 2013-10-15 13:42:40 av Janis Kracht (1:261/38)
Kommentar till text 10738 av Roy Witt (1:387/22)
Ärende: APODs
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Hi Roy,
> Sadly, more frequently than not with the way more and more people are
> turning 65 these days.
Dang... if there was just some way to stop aging <g>
>> . that's just BigPhama.. I could on about that but it's not worth the
>> discussion <g>.
> When you get on the Medicare rolls, your meds are subsidized by the SSA
> (gov't) and you pay an extra premium for drug coverage (Part D).
Yep.. I could have taken that part of Medicare also when I got MS, but decided
not to. Since we always had decent insurance (in the past), it wasn't
necessary. I could go on it now if I wanted to, but I'm lazy. And the wait
for it to kick in as I understand it is a long time. Then too, years ago the
neurologist in Manhatten I was seeing didn't accept medicare.. so that was
another reason I didn't take it.
>> Nope. Since I have a 'dred disease' that's not ever going to go
>> away, and because I worked most of my life the gov't gives me some
>> $$.
> I have one of those 'dred diseases' too, but the gov't never gave me
> anything for having; the aging process.
We all move into that area eventually...
>> and then Aetna may still reject it. Then I'll appeal their decision
>> if I really care to go on this drug, but it's so new.. I may just
>> tell my doc. forget it
>> :)
> Does the maker of that drug have a program that allows you to receive that
> med with little or no cost? I did that for a year, but I didn't like being
> in a near coma and sicker than a dog, so I stopped taking it.
No, not for this one. Nor for any of the new ones that have just been
developed...
>> that gets chronically slowly worse. Most people though, have it like
>> I do.. it's just a PIA. <vbg>. Now some day when I'm in my 80's I
>> may progress to a nastier version, but MS is damn weird.. it affects
>> everyone differently.. and by the time I'm in my 80's well... I might
>> give in and get a cane then Lol.
> Make sure the cane has a high impact cattle prod so you can give the rude
> teens of the day an experience in PIA...8^)
You are not kidding :) :) I'm tempted, believe me haha
>>> Look at MJ Fox and see the
>>> results of MS with aging.
>> MJ Fox doesn't have MS.. he's got Parkinson's.
> Right. Forgot what it was.
No problem.. they're all weird, that's for sure. Immune disease of the day..
Our family is chock-full of them it seems.. Chron's (wheat-intolerance), MS,
diabetes..thyroid cancer..food allergies, alopecia... My daughter tells her
doc that our family is an immune disaster <g> So I count myself lucky to be
honest <g>
>> Very different disease ... My uncle had that one.. poor guy. He
>> suffered in a similar way to MJ Fox before he died.
> Kate Hepburn had it too. You could tell the difference in her voice after
> she aquired it from her voice in earlier films. She lived to be in her
> 90s, so it couldn't have been all that bad for her.
Yeah, what a lady she was.. incredible actress. She did ok from what I could
see.
>> These days they have better meds though for that one.
> I would think so.
I read that MJ Fox has to fake some symptoms as part of his character on his
show... I was glad to hear that things are undercontrol.
>> Everything with MS is very new except for the standard "CRAB" drugs
>> as they call them. The CRAB drugs (Copaxone,Rebif,Avonex,Betaseron)
>> are even nastier drugs for what they do to you side-effect-wise
>> (injections every day, constant flu symtoms, nasty looking injection
>> sites), so I never agreed to take them. The "new" drugs are very
>> very new, and while they'll cause a lot of infections they've only
>> killed a few people (seriously <g>) Anyway, that's why I am in no
>> rush <g>. These are kind of like cancer drugs that affect your
>> immune response, hence all the infections.
> Ahhh, yes. Treat the symptoms and kill the patient. I've seen that happen
> before.
Yep.. I was on another MS drug for something like 25 years that was actually an
immune-supressant, anti-rejection drug for Kidneys for cancer patients.. I
fought infections constantly when I was on that one (Immuran). Not nice. You
lost your hair too with that one.. well, thank goodness it grew back :)
Now the only thing I take is a weird one, Naltrexone (low-dose, 4.5mg) (LDN).
Costs $30/month, no side effects, and actually improves your immune system
rather than supress it. I've been on it for about 10 years, and it's working
great. http://www.lowdosenaltrexone.org/ My doc in NYC was Dr. Bihari, who
discovered this drug's effect with MS and other immune disorders after years of
research.
>> I know how Aetna thinks haha.. they'll reject it just because they
>> will hope that I won't push it..
> They're counting on you to give up on it. If you continue to push it,
> they'll give in rather than have the media find out about it.
hehe.. true. Well, like I said, I would have to go off the LDN since that
increases your immune response and these drugs the doc is pushing are immune
supressants. Hard to figure changing what works, you know? :) I haven't had a
single change in symptoms since I started LDN.
>>>>> to the medical practice. Many doctors refusing to take new patients
>>>>> due to the Obama-scare plan, many more are taking cash only.
>>>> Nope, not ours.
>>> Then you have a good doc who's working for your best interests. Same
>>> as mine does.
>> Yep, he's a good guy. He knows how Aetna is..
> I usually heard that about Humana, not Aetna. Which is why I switched to
> Aetna last year.
Heh.. the company we work for was owned by Humana for a short while while we
were in Kentucky.. We had great insurance then <grin>. Then someone along
the way wondered what a health-insurance company was doing in the software
business?? So then the company became an employee-owned company.. right now,
I think we're somewhere between there and god knows what.. <g>.
>> We had BC/BS for years when we had our own company, they were great.
>> Back _then_ they were extremely expensive.. I'm talking like 20-30
>> years ago. Trouble was once you have any 'dred disease' the insurance
>> companies charge you up the ass. That's when we started working for
>> another company to get insurance through them.
> Unfortunately they're allowed to share your info with another insurance
> company, which is why your history followed you around. If this was
> pre-1965, you could potentially go from one doctor to the next without
> revealing any of your past or present history.
And now actually, with Obamacare, one nightmare can't happen anymore.. that of
preexisting conditions. That was something we always had to consider in
everything we did.. if we lost insurance say past a cobra period, no one would
have insured me... that to me is an amazing change these days.
>> I'm sure everyone has an insurance horror tale for every good one..
>> it's the nature of the beast <g>.
>> Our plan is so bad, that for a procedure that you can get for a
>> couple hundred dollars in Europe, I have to pay something like
>> $1500.00 here in the US (that's my cost after insurance pays). MRI
>> exams are ridiculously over priced in this country. I had to get one
>> though to prove that I still have R/R MS though.
> I'm scheduled to get an MRI soon, they're looking for any Wardism's that I
> may have aquirred through Fidonet. 8^)
hahahaha :) Could be serious, Roy Lol Well, enjoy the test. It wasn't so bad
once I got used to sitting in the dang tube or whatever. And now I have a
movie of my brain on MRI I can look at and say, geez, what insanity. :)
>>>> For us when it comes down to it, it won't be much different than what
>>>> we're paying now, but the coverage will be MUCH better, and copays
>>>> won't exist.
>>> That's what Obama says, but it isn't true.
>> That's what the program we will select will do when the time comes.
> Skeptism on...
It's right out there in print.. If we're paying for it, I don't think they can
back out, but who the hell knows.
>>>> It's the benefits that will increase.. dramatically.
>>> 8^( That isn't what's being reported by those who have signed up.
>> Depends on what plan you sign up for, Roy. The one we're looking at
>> isn't cheap, but it's a much better plan for us compared to what we
>> have now.
> Good luck with that...
We hope it works out like it's supposed to.. we'll see eventually.
Take care,
Janis
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